So often people will ask me if I "heard" something. Did you hear that noise? Can you hear the TV? I used to say yes, because I could, in fact, literally "hear" what they were talking about. The sound traveled to my hearing aids and somehow to the part of my brain that understands there was a noise.
But hearing is not the same as understanding. I can hear that noise, but I can't identify its origin. I can hear the TV playing, but I cannot attach words and phrases to the din. My hearing aids help me hear, but I need more than a hearing aid (lipreading, an interpreter, captioning, etc) to help me understand.
I have pretty poor speech recognition; that is, I cannot really understand much unless I am facing the speaker and lipreading or listening to something or someone (like a song or someone reading from a book) and reading along with it. I can't understand something by hearing alone, I need some kind of visual cue to go along with it.
So while I'm flattered when people are impressed that I "do so well" communicating, I'm also a little frustrated because what they don't see is how hard I work to do so well - and they don't know all the times I am faking it! And I wonder sometimes if they think I must not need very much help because I "do so well."
I feel like I'm constantly walking a fine line with hearing loss. On one hand, I feel like I have to prove that it really does disrupt my life and change experiences for me; on the other hand, I have to prove that I am still capable of doing things, like carrying on a conversation in a crowded restaurant, for example, even if it means I have to work a little harder. I'm both more and less capable than I let on.
Have you ever felt like that? What was it like?
Monday, September 13, 2010
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I've been told I do well too. Yet I don't feel they know or understand just how difficult and tiring it can be. Even though I have tried to explain.
ReplyDeleteThey have not even seen those very rare days I get, where I struggle that bad because my tinnitus has flared up big time, that I have to resort to pen and paper to communicate.
This is one of the things I'd love to be able to teach the world - the difference between detection and understanding. Though I don't personally know what it's like, I know that it must be exhausting. I hope you get plenty of down time with people who don't force you to constantly prove yourself. We all need that.
ReplyDeletethat is some interesting insight!
ReplyDeleteI got this in class last night "You don't look deaf!"
ReplyDeleteReally, what does deaf look life?
Grrrr...people.