Showing posts with label church. Show all posts
Showing posts with label church. Show all posts

Friday, October 29, 2010

Contributing with disability - Part 5-ish

Whew. I made it. Part 5-ish. I don't know how some bloggers manage to do this every. single. day. Kudos to those who do! I've learned a lot from writing this little series and I'm so grateful for the discussion it's sparked. I hope we'll keep on discussing and talking and thinking and engaging. Community-ing, if you will.

Defining disability - Part 1
The kinship of disability - Part 2
A proper response to disability - Part 3
Learning from disability - Part 4

Anyway, so all week long I've been talking about what the church can and needs to do for those with disabilities. But as with most things in life, it's a two-way street, you know. Those of us who do live with disabilities cannot just stand around, waiting to be served. My friend Carin commented on one of my earlier posts and I thought she made a great point:

"Disabled" people also need to get involved and do things they are gifted and able to do. ... [W]e who are viewed as "disabled" have a responsibility to become involved and serve as well. And it need not be only in the area of our "disability" as you said. For example, as a deaf person, I am still able to serve my church family in many ways - not only the deaf - but my CHURCH FAMILY (all of them!). There are some things that I am not able to do well because of my hearing loss, but there are many other things I CAN do to serve. I need to do some of them and not just sit back with the attitude that "oh I am deaf..."

People with disabilities are often just as guilty of perpetuating division within the church by demanding this service or that accommodation, or by sequestering themselves with people who are like them. I know that sometimes I am tempted to think that because I have a disability that my suffering is more unbearable than someone else's, or that I am worthy of more attention because of it. But that is not true at all. Disabled or not, we are all sinners in need of a Savior and ought to serve one another in light of that truth. When I look at a brother or sister, I shouldn't see their able bodies and be jealous or angry; instead, I should see someone who needs Christ just as much as I do. The cross is an equalizer in that there is no room for superiority or inferiority in the Body - we are all disabled in soul before the Lord.

Something else that I'm tempted to do is to claim that I have nothing to contribute to the Body or that I'm worthless to serve because I can't hear everything. But when I do that, I buy into the lie that hearing loss defines me instead of embracing the truth that the gospel does. It's true that I can't hear everything and that there will just be some areas where I cannot serve. For example, you'll never see me help lead worship and I'd be reluctant to work at the information desk. I see so many people with disabilities just not contribute because they focus so much on what they can't do, or maybe they're missing all the things they used to be able to do and now suddenly can't. And at the heart of it is a pride issue; we want to do what we want to do and are angry that our efforts are hampered. Isn't God faithful, though? He doesn't let us slip through the cracks and He certainly doesn't put us out of commission just because our ears or legs or eyes stop working. To say that we have nothing to offer because of our disability is like saying that disability has more power than God, that the Almighty could somehow be crippled by our weakness. Puh-leez.

Having a disability does not excuse us from coming alongside of our brothers and sisters, to weep when they weep, to rejoice when they rejoice. My hearing loss does not let me off the hook to make meals when a family welcomes a new baby, help coordinate childcare, hand out worship guides, pitch in with cleanup, be kind to people, love them as Jesus does and offer a listening heart. It's true that I can't do everything, but I can trust that the Lord will equip me to do the things that He has called me to do - for my good and His glory. And so often, we expect that God has a special job just for us and that disability has somehow thwarted that plan, but that's presumptuous. God is, I think, less concerned with exactly what it is we are doing and far more concerned with how we are doing it. There are no loopholes in Micah 6:8 - abled or disabled, the decree is the same:

He has told you, O man, what is good;
and what does the Lord require of you
but to do justice, and to love kindness,
and to walk humbly with your God?


Finally, those of us with disability need to remember that these are just temporary bodies. C.S. Lewis said, "You don't have a soul. You are a Soul. You have a body." Bodies with crooked spines and lifeless legs and silent eyes and damaged ears - they're just for now. Disability advocacy and raising awareness is a good thing, but it's not the most important thing. When we make disability the standard by which we live, we've missed the point. When we judge other people or churches based on whether or not they meet our needs, we're sinning. At the end of the day, the question is not, "Did the church serve my disability?" but, "Is Jesus my only hope?" Am I finding joy and fulfillment and completeness in the finished work of Christ and embracing the truth that His blood has already spoken for me, or am I basing who I am and what I think and how I act on how my body functions or doesn't function?

God is enough. And that's all I really wanted to say.

Wednesday, October 27, 2010

A proper response to disability - part 3

So because I consider myself to have a disability and strive to identify – at least emotionally – with other people who have disabilities, I’m naturally drawn to discussion on the topic, particularly in a church setting.

I know a lot of deaf and hard of hearing people who have a hard time with church. Even churches that provide an interpreter or other accommodations haven’t equipped the rest of the congregation to come alongside of those with the hearing loss. So the deaf and hard of hearing tend to just fellowship with each other. And this doesn’t just happen in church, really, but in daily living. And not just with people with disabilities. We all tend to clump together with people who are like us, regardless of how much we say that we are in favor of diversity and unity and yada yada yada.

So when it happens in church, on one hand, it’s natural and unsurprising. On the other hand, that’s not who God has called us to be in Christ. Scripture says that we are all one in Christ, and that we are part of one body. There shouldn’t be division in the church because we’re all the same before the Lord. I really long to see the church come alongside of people with disabilities, not just to minister to them in the sense of serving them and making life a little easier, but to enter into their world with the intention of learning from them as well. To welcome people with disabilities as wholly functioning parts of the Body, not treat them as a fringe ministry.

I'm so thankful for blogs like The Works of God and Wrestling with an Angel. Both of the men who write these are fathers who have children with a disability. I don’t know the particulars of each and a parent’s perspective is a bit different than the child’s, but I can identify with a lot of what they share and I appreciate their gospel-centered perspective on suffering.

A while ago, John Knight (The Works of God) wrote a post that helped clarify my own thoughts. I encourage you to read the whole thing, but I particularly liked his argument that God cares about disability, so if we are called to care about the things that God cares about, then we need to care about disability, too.

What this means, too, is that the responsibility for caring for those with disabilities in the church should not land only on those who live with it (the individuals themselves or the family members who care for him/her). We should all be concerned for one another, regardless of the state of our bodies, because we are all members of the same body, and we all belong to each other.

But I'll be honest. I'm not entirely sure what it looks like for a church to come alongside of people with disabilities. I think it starts with a solid theology of suffering, though, and an understanding that God is good even when difficult things happen in our lives or to our bodies. That's a hard truth to cling to, but I think the more a congregation understands this, the more willing they will be to do the coming alongside thing. And as with any kind of group, really, it starts at the top. Pastors, elders and other church leaders should be setting the example and even consider preaching about it.

What do you think? How can a church come alongside of those with disabilities? Should it? What are some things that might keep people from doing so?

Tuesday, October 5, 2010

What Would You Ask: Lectures and Sermons

Last week, Suz asked:

"[H]ow do public speaking forums work best for you (aka. lectures, sermons, etc.)?"

Um, seriously, are you people stalking me? In the hiding-in-my-closet-and-spying-on-me-way, not the I'm-following-your-blog way. Yet another timely question, as I just got back from the Desiring God conference in Minneapolis this weekend, which provides the perfect backdrop for this particular query.

One of the things I really love about Desiring God is their no-holds-barred approach to ministry. They have a "whatever you can afford policy" on their resource items and have faithfully provided accommodations at their conferences. They're pretty good about supplying transcripts of online audio or video and they're faithful to translate their library into other languages so that all people might learn about God. This year's conference was no exception. They offered ASL (American Sign Language) interpreters in addition to Spanish and Russian translators. They don't let anything keep them from sharing the Gospel.

I was really thankful to have the interpreters because even though I was sitting in the front row and the speakers' faces were projected on a large screen behind them, it was still difficult to lip read. They moved around a lot or were just a little too far away to catch. And I tried, but there was just something about lip reading on the screen that was difficult. I'm not sure what it was... maybe I rely on body language to help facilitate communication more than I realize and the way the camera was positioned, we mostly only saw the speaker's face on the screen. So because my primary mode of communication - lip reading - was weakened, I was thankful to have the interpreters for help.

However, I was reminded once again how much English, and not ASL, is my first language. I felt like I could mostly keep up with the concept of each session, but the Wordie (oh there I go making up words again) in me really wanted to know exactly what each person was saying. For example, when Al Mohler was talking, he kept using the word "unregenerated" to refer to those who do not know Christ. But the interpreters would use the sign for "non-Christian." The concept is the same, but the nuances were not. "Unregenerated" brings to mind the powerful work of the Holy Spirit and illustrates the lifelessness of the soul apart from God. "Non-Christian," on the other hand, connotes someone who just doesn't go to church or ignores God. Yes, the two words are technically the same, but one brings more depth to the table than the other.

So don't get me wrong. I'm so thankful I even had the option of ASL interpretation because without it, I really would not have gotten anything out of the conference. I think in that environment, I would have benefited more from captioning and as God would have it, I had an opportunity to make the case for it.

On Sunday morning, I decided to head to the exhibit hall to see if I could talk to a Resurgence representative about getting their online videos subtitled. I was disappointed to find out that no one was manning that booth, so I just wandered around for a little bit and read my Bible for a few minutes. Then I decided it was about time to go and find my seat for the last session. As I got up, I saw Scott Anderson, the conference coordinator, walking across the hall. I had the fleeting thought that I should thank him for the interpreters, and I would have talked myself out of it if I had listened to my inner wimp. Instead, I found my feet propelling me in his direction and before I could stop myself, I heard my mouth greeting him and explaining who I was. I thanked him for being considerate of the needs of the deaf and hard of hearing attendees and how much I appreciated Desiring God's faithfulness to come alongside of those of us who just need a little extra help.

And then I did it. I asked him, "I was just wondering, would you be willing to consider offering captioning at future events?" I explained what captioning was and how it worked and what my experience with it has been like. You guys, he took his notebook out and started taking notes! He was so kind and listened intently to everything I explained and really seemed interested when I clarified that not all deaf/hard of hearing people benefit from the same accommodations. I also explained that it's not just deaf/hard of hearing people who benefit from captioning, but people who are learning English as a second language or even people who are visual learners. He said he'd been wanting to do something like that for a while but didn't quite know how to go about it. He gave me his card and asked me to email him to continue the discussion! I was so thankful for - and humbled by - his attention; even though he was a busy, busy man that weekend, he talked to me like he had all the time in the world. Isn't that just so like the Lord?

So yeah, I know that story doesn't have a lot to do with the original question but I thought it was too sweet not to share. :) So anyway, back to business. In that situation, captioning would have helped and I am considering bringing it up for church. Right now, I sit near the front row and lipread the best I can. I think that I generally get enough out of the sermon to be able to discuss it with other people, but I miss a lot of the jokes and I know I'm not getting every single thing the pastor says. He talks fast. He moves around the stage a lot. So I wonder if captioning might enhance the experience for me. I'm hesitant to use an interpreter because I don't like drawing attention to myself that way. And yes, I'm that vain. ;) Plus most interpreters will use ASL and we've already established that that's sometimes not the best solution.

Now, I did have sign language interpreters when I was in college and I will say that in some situations, I feel more comfortable with an interpreter than with captioning. My interpreters, knowing my penchant for English, modified the way they signed so that they were using ASL vocabulary but with English grammar. And a good interpreter works with their client(s) to deliver the information in a way that best fits the client's needs. I had good interpreters.

Anyway, if I'm part of a classroom or some kind of setting that requires listening to one speaker and then going over discussion questions with the people sitting near me (church people - think midsize group/Explore-type settings), an interpreter is a good fit (although, again, I'm too vain to ask for one. Thereisaidit). With captioning, the person typing can only hear whoever is speaking into a special microphone, so if several people are talking at once or taking turns talking, it's cumbersome to pass the mic around. An interpreter can (in my opinion) more easily relay that kind of information and also convey expression. My interpreters could tell me if the professor sounded mad or if another student was confused. I can't always tell tone, so it was helpful when the interpreter would explain the mood and not just the words to me.

I've also had friends take notes for me, which was really helpful. It's hard - not impossible, but hard - to take notes and watch an interpreter at the same time. ;) And I have put myself in classroom-type settings without any accommodations before. I just lipread the best I can and I have friends who, without being asked, will jump in and start writing a summary of what's going on. They're kind like that.

Mk, friends, your turn. Whaddyawannaknow?

Friday, March 26, 2010

Is Happy Hour still happy if you don't drink?

Random fact of the day: When I was a kid, my chores were to empty the dishwasher and to take out the trash. To this day, I would rather clean my apartment from top to bottom than do either of those things. In fact, my clean dishes have been sitting in the dishwasher since Monday. Just go with it.

Hearing aids: I get asked a lot of I know sign language. I do, I just choose not to use it much. I'm happy to let my hands do the talking if I'm conversing with a deaf or hard of hearing person or with an interpreter but beyond that, I'm milking my voice for all it's worth. I don't like to sign because I tend to avoid things that separate me from other people, that make me different. I know, I know, we're all unique (gag) and should celebrate our differences (double gag) but I don't like standing out. I like to blend in.

In other news: I have a sneaking suspicion there's some kind of drinking subculture at... church. I know, right? One girl I met in my small group asked me if I did Happy Hour. I stammered out something like, "No, maybe, sure, what?" She said she'd invite me the next time she and her friends go. Then at church on Wednesday, this guy introduced himself to me and said that "a bunch of us are going to (Bar Name) if you want to join us." And all I could think is, "At 8:30?! On a school night?! Alcohol?! I have to work tomorrow!" I basically said thank you, but not this time. I told him I was still getting over a cold. Which was technically true but not true enough to be a valid reason for not going. The truth was twofold - a) I'm just not that into drinking and b) the idea of trying to get to know people in a dimly lit establishment after struggling all night to keep up with the topic did not really appeal to me. I didn't think it was the right time to dump all of that on him, though!

I'm really not against drinking. If you have a glass of wine with your meal or a beer during a game, what do I care? If you have several and start getting mean and lose your inhibitions or worse, get behind the wheel, then I have a problem. Drinking = ok. Getting drunk = no bueno.

I'm just not that interesting in drinking myself. I will have something mild, like a cooler, ooooonce in a while (I mean, I am talking like once or twice a year here) but that's it. Going out for Happy Hour or to the bar every week doesn't float my boat and here is why:

1) I'm not that crazy about the taste. If it's really fruity, I could probably go for it, but beyond that, ick.

2) CALORIES, friends. Avoid them like the plague.

3) Drinks are expensive! The day after I turned the guy's invitation down, I looked up the bar in question, wondering if maybe I was confused and it wasn't a bar, just a restaurant or something. Nope, definitely a bar. And the drinks were like $9, $11, $7. The cheapest I could find was $5 for a spritzer. (Which I made note of should I ever decide to join them) I would just rather put my money towards something else - Redbox, electric bill, groceries, savings account, shoes, a restaurant I actually like, etc. Alcohol is just not something I want to pay for regularly.

4) Alcoholism runs in my grandma's family. I don't really know where I stand on the whole "Is alcoholism genetic" debate, but why take the risk of becoming addicted?

5) I have an obsessive personality. For instance, if I'm going through some drama with someone - an argument, a disagreement, a personality difference, whatever - I tend to sink my teeth in it and never let go. I recycle old arguments in person and in my head and just can't seem to let things go.(And all my friends and family just looked at me in feigned shock. Go away.) I struggle with my weight because I struggle with food. I eat mindlessly and get cranky when I don't have something delicious stuffed in my mouth. I mean, seriously, have you seen me with a piece of chocolate? It is not pretty. So really, where's the wisdom in putting alcohol in the hands of someone who tends to cling to things and not let go?

This is not to say that I will never, ever, ever, ever drink or anything. I don't mind it once in a while. I just don't want to make a habit of it. Which leaves me wondering now - am I going to be able to make friends at church without Happy Hour-ing?

Meh. I'll just have to entice them with home-cooked meals and good, old-fashioned movie nights. ;)

Sunday, February 21, 2010

Deodorant. Use it. Love it. Embrace it.

Random fact of the day: The ONE day I end up sitting in the same pew with a gaggle of fine young men WILL be the same day I forget to put deodorant on. Reason #284 that I am single, folks.

Hearing aids: Balance. I am pondering and pondering how to achieve this. I do not want to be one of those people who loudly "demands" this service or "deserves" assistance. People, the world is full of souls who are hurting and need help in so many different ways. What makes me any better than them and how highly do I have to think of myself to expect everyone to fall all over themselves to give me a hand when they have their own things to deal with? So no, I don't want to be one of the voices clamoring for attention - I'd rather be one of the hands offering compassion to a hurting world, because I hurt right along with them.

So with that in mind, where's the balance between being honest and admitting when I need help with something and not speaking up because to do so would just be one more thing on a very busy person's to-do list? What do I do in a crowded situation? Do I ask for help? How should I feel if the answer is, "No, I'm sorry, we can't do that right now."? Do I take one for the team and get what I can out of it with limited resources? How do I bear that well?

I'm just one person. Who am I to ask the world to stop and give me a hand? At the end of the day, does it really matter whether I heard every single word of the conversation or just 60% of it? On the other hand, while I'm keeping my needs to myself in order to make everyone else comfortable, I am wondering, "Don't I matter, too?" It's an angry question and a poignant one. Sometimes, I grumble and scream, "What about ME?! When is it MY turn?! Why doesn't anyone ever think of ME?!" Other times, and this is the one I have a hard time explaining to people, I truly am wondering - do I matter enough for people to make adjustments for me? Unless you've lived in my shoes, it's difficult to express how all the itty bitty slights I experience throughout the day or week - people getting frustrated when I ask them to repeat something, forgetting to include me in the conversation or just flat out ignoring me to accommodate their own comfort zone - all adds up to, "You don't really matter. You're not worthy of my time." So once in a while, I do ask, "Do I matter, too? Am I enough a part of this friendship/church/conversation/group that you're willing to put your comfort aside long enough to help me feel like I belong?"

So where's the line? Where's the balance between needing to feel included and needing to put myself aside for the sake of the people around me? Oy. Community is a tricksy, tricksy thing!

In other news: Must. Get. Passport. I've got the travel bug. And I need a traveling companion(s)! Inquire within! I haven't seen much outside the Midwest. Never been to California, the Pacific Northwest or the deep South (Nawlins, anyone?!). Never been out of the country, either, but I'm currently sans passport. So I'm determined to at least see as much of the U.S. as I can this year, vacation days permitting, of course. So far I'm booked for Columbus, OH this spring and maybe Vegas this fall. I'm dreaming about San Fransisco, New Orleans, Seattle and Chicago. We shall see.

Never thought I'd say this, but I'm getting tired of TV. Yep, you heard it here first! Lost excluded, of course.

Peace out, boy scout!

Tuesday, January 26, 2010

This is what happens when I give up caffeine

Random fact of the day: I have way too many calendars. Three in the kitchen, one in the bathroom, one in my bedroom, four in my cubicle. I have no explanation for this other than that they were free.

Hearing Aids: I don't have a lot on this topic today. Right now, I'm wrestling with two conflicting ideas: 1) I don't want my thoughts or my blog to be 100% consumed with being hard of hearing yet 2) the fact remains that being hard of hearing does affect an awful lot of my daily life. It's hard to find balance - how to address and deal with the valid issues that arise without making them out to be the End. Of. The. World.

Loneliness is a pretty constant companion for me - the company ebbs and flows, but it's always there on some level. I've been feeling it more keenly lately and I'm not sure why. I feel like I've wasted a lot of my 20s being mad and isolating myself and now that 30 is just three years away, I feel like I'm panicking and scrambling to make the most of the 20s I have left. But I'm not really sure how to do that, either.

In other news: I decided it's time to kick the habit... the Cherry Coke habit, that is. I am parting ways with my nectar of life in exchange for a slimmer waist and a body that's not dependent on caffeine to get through the day. So far, all I have to show for it are raging headaches (I feel like there are midget elf miners chipping away at my temples) and what I hope are not permanent bags under my eyes (seriously. I could put my groceries in them)... someone please tell me it gets better!!! And I know myself, I can't totally abandon all things cola, so I do plan to treat myself to Cherry Coke when I go out to eat or on a special occasion (like my birthday or something). I just need to get it out of my daily diet.

I would really love to be comfortable at church again. Maybe these thoughts should be under Hearing Aids because I'm struggling to plug in at church because of my communication difficulties. But sometimes I also think that I just don't know how to be comfortable at church after some of my past experiences. So I've just been mulling over what it means to be part of a local body. What does it look like? How does it look on Sunday? During the rest of the week? I haven't come up with a lot. What's important to YOU in a local assembly?

Friday, January 8, 2010

Missional living

Sometimes I feel like I'm living a part of church history that my (hypothetical) kids and grandkids will learn about when they're my age. The generations before me had Billy Graham, Dwight Moody, the Wesleys, Jonathan Edwards... my generation has Matt Chandler, Mark Driscoll and John Piper, to name a few. (And I like to refer to them as Marky D and J-Pipe. Just so you know) I have great respect for these men, but I'm the first to admit that sometimes I feel a little bit lost with the Reformed culture of today. I go to an Acts 29 church, and churches in that network tend to espouse things like Truth, Worship, Beauty, Community, Missional Living, etc in their core values. It all sounds so eloquent and right and biblical from the pulpit but sometimes it makes me uncomfortable. I'm not really sure why. Maybe uncomfortable in a "pushing me out of my comfort zone" way. Which is rarely a bad thing. I guess sometimes I think that people get so caught up in pursuing those things that they manage to leave Jesus out of it somehow. But I guess that can be true of any church, regardless of the denomination.

Something I really struggle with is the concept of missional living. The way I understand it, it basically means to love Jesus where you are, work to show others around you (your community) who He is. Pretty much what almost every Christian has heard except it's much more intentional. The pastors at my church, for example, purposefully moved INTO urban core of the city and form friendships with their neighbors, their kids' school friends, etc. I'm not sure why I struggle with this. Sometimes I think it's sneaky, like you have an ulterior motive for loving people. Other times, it just forces me to think about what's more important to me - my safety, health, convenience, etc, or loving Jesus.

But today I think I figured out the underlying issue - being missional means talking to people. To strangers, more specifically. This is so not my forte. Communicating with people I know and love is hard enough - throw a stranger into the mix and we have one very anxious Lucy! :) The thought of forcing myself to meet my neighbors or chat it up with the cashier at the grocery store - even in the name of Jesus - seems exhausting to me. It's so easy for me to write it off and think that well then, I must just not be one of those people who can be that effective in the body of Christ. I've basically tried to convince myself that I'm exempt from Scripture. I know it's fruitless to think so, but kind of funny. I am sure God had a good laugh at that reasoning. :)

Anyway, there's a new church plant in my area and I was reading the pastor's blog. He was talking about missional living and I thought, here we go again. But even though I've heard it before, it felt like I was considering this for the first time: "Do something that you love to do." He gave an example of how his wife loves to bake so she bakes her little heart out and shares the goodies with the neighbors. Not long ago, I was telling a friend of mine that I wanted to volunteer and I knew that hospitals needed people to hold the babies. But I told her I felt kind of selfish - wasn't I just satisfying my own need/desire by wanting to do that? She pointed out that it's ok to do love Jesus by doing something you love.

This isn't really a new concept - I probably heard it as "use the gifts God gave you" when I was growing up. But phrasing it like that seems like an obligation somehow. "Do what you love to the glory of God" sounds more freeing somehow. Like God instilled within me a desire to write, so I can write and do it cheerfully and excitedly and passionately... and isn't that what He wants, anyway? "God loves a cheerful giver." (2 Corinthians 9:7) And isn't that who HE is anyway? Cheerful and excited and passionate! :)